Wednesday, December 19, 2018

SDR Surgery

Selective Dorsal Rhizotomy surgery for patients with spastic cerebral palsy.   Anyone heard of it?

A friend, of a friend, told my friend about it and she told me last week.  The friend's 9 yr old daughter had this surgery and I  guess it improved her life quite a bit. 

I haven't done any research on it but thought I'd pass the info on by posting it here:

Monday, September 17, 2018

August 31, 2018 - 3rd grade Open House

We went to Kiana's 3rd grade classroom for Open House on Wednesday. There was a wall of portraits that the students had drawn of a family member and I had to find myself based on portrait and description. Kiana makes my heart joyful.
- She was on the news
- She was in Sarah Foley's Veritical Beauty Project
- She is nice
- She is disabled
- She NEEDS chocolate

Tuesday, July 24, 2018

Teaching compassion and independence, whether they like it or not

My baby is starting kindergarten in a few weeks.  Today was his kindergarten assessment/testing.  While he went into one room with other students and teachers, the parents stayed in another classroom to complete paperwork.  Kiana, my 8 year old, going into the 3rd grade, was with me and without being asked she just started filling out the paperwork for me, knowing it's a tedious, difficult task for me.  She is amazing and I thank God for her.

Although, on the other hand, the other day she was complaining and asking why she was ALWAYS the one who has to help me.  She may roll her eyes and sigh, but she still does what I ask when it comes to difficult tasks.  (Chores on the other hand are a different story.)   She'll appreciate it when she's older.   I do try to make it even and ask Scott for help too.  He's pretty much always willing to help.  For example, if she takes the veggie dip bowl (glass bowl) out of the fridge, I'll ask him to put it away. 

Thursday, April 12, 2018

Look for the blessings

I enjoyed this episode with Courtney Wetzel on The Happy Hour podcast. (click link to listen: the-happy-hour-187-courtney-wetzel ) When she talked about her view of her parents (her mother with a speech impediment and her father with a cane) growing up and her view of them now was encouraging to me.  My children are 8 and 5 now, and although I am still their world I know they do get questions as to why I walk differently or why they have to help me do certain things, and there might be a day when they are embarrassed by me (I realize all teenagers  get embarrassed by their parents but I pray they are not teased for having a "different" mother.).  Having a disabled mother is shaping them into independent, compassionate, patient people.  God has a purpose for them having me as their mother.  Just like God had a purpose for me being born with cerebral palsy.  God didn't give me more than I couldn't handle, without Him. I was blessed with the amazing children He gave me.

Sunday, February 18, 2018

Vertical Beauty Project

I met Sarah Foley in MOPS. And recently I was part of her Vertical Beauty Project. She also is the author of this blog Vertical Blonde . She radiates courage and strength, and her blog posts have encouraged me to start exercising again.    I am so grateful to have been included in this project. 

Here is the video from that project:

Vertical Beauty Project Video

Friday, January 12, 2018

Thursday, September 7, 2017

Transparent hand prints led to transparent blog post

I saw Scott's perfect little hand print on the window this morning while pouring cereal for the kids and my first instinct was, "arg, I just cleaned that window yesterday!", and the OCD in me wanted to immediately wash the window.  (Two years ago I would wash fingerprints off windows and mirrors, and vacuum floors every single day.)  But then I paused, and felt nudged to take a picture of that perfect, little, sweet, hand print.  I want Scott to stay 4 forever.  :(  My phone camera wouldn't capture  the hand print so I decided we would recreate it using finger paint this evening.   

I started taking anxiety meds for my anxiety that had developed toward walking on concrete and in public, a new fear of falling down.  The medication, and I tried several at various dosages, didn't address the anxiety of falling down and I eventually had to get a walker to use out in public, which I had to come to terms with and accept, but anxiety medication did help with my OCD.  Ever since I was a kid I've liked organization, things planned out in advanced, vacuum lines on rugs.... lol.  I remember having anxiety every morning before school afraid I was going to miss the bus.  Now, I'm more relaxed.  I have less anxiety over getting to places on time, I don't have to stick to a ridged cleaning schedule, I can go weeks without washing the windows or mirrors, I'm a little more easy on the kids about allowing them to leave toys in the living room, I snap at them less for messes they have made, my morning mood isn't ruined if I wake up to dishes on the counter from the night before, etc., etc. Sure, I still have triggers, and I have my days of high anxiety and OCD cleaning and organization.  I am more at peace in my home when it is clutter-free, but the grip of anxiety has less of a hold on me. 

Praise God I've never suffered from an anxiety attack.  Prior to seeking professional help for my walking (physical and mental, which I've talked about in previous blog posts), for 2 years I was consumed with this frustration that I could no longer walk like I used to.  I woke up every morning and that was the first thought in my head.  I started getting depressed.  I tried to tackle it with God, through prayer, and on my own with exercise.  After 2 years I had had enough and gave in to needing professional help.  The physical therapy and taking meds to help my muscles relax didn't bother me, but I was a little more resistant to getting mental help.  There's this stigma in society toward mental health.  But anxiety and depression is a chemical imbalance in the brain (and I'd also like to add that anxiety/depression can also be triggered by past trauma for other people), and God gave us doctors, counselors, and medications to help.  After seeking advice from Christian mentors and reading on anxiety by Christian authors, I am open to sharing.

I praise God for the help He has given me.  I am thankful for the power of prayer, for doctors, for medication, for my walker, for the transparency of friends and other women, and for sweet-little-4 year old boy- hand prints on windows.  What transformation, freedom, and joy those handprints brought me today.